We are devastated to hear that Aunt Bernice was diagnosed with ALS. Who could have imagined?! It has been a journey to get to this point, but at least there is now a diagnosis. She was at the hospital, but wanted to go home when she was told she would probably not walk again. She was given about 6 months, and we all thought she had more time. It was 9 days from the time she arrived home. Mom, Dad and Kevin had planned on going and spending a few weeks in NY to help, but it didn't happen that way. After talking with Sharon, I decided to get Mom to NY as soon as possible and I'm so glad we did.
I hope she knew we were there. I know it was important to Mom and it certainly helped bring things to light. Bernice would not have wanted to live hooked up to machines. I think she was blessed in that it all went so fast.
The outpouring of love and the amazing letters were unbelievable. Such a great person and a loss for us all.
We are all heartbroken.
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